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Topic: Specific disability

ACN: Communication Access for People with Complex Communication Needs - Vol. 20 #3
(September 2008) This issue seeks to expand the boundaries of our thinking about the rights of people with complex communication needs (CCN). Without the right to communication access, there is no equality for people with CCN and too few are included in their communities.
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Newsletter Contents:

Clinical News: Communication access for people who rely on AAC
Governmental: The UN Convention on the Rights of People with Disabilities
For Consumers: Communication assistants: Human supports for communication access
AAC-RERC: The Human Element
Resources & References
ACN: Emerging AAC - Vol. 20 #1 & #2
(June 2008) This issue focuses on ways each of us can support our colleagues who are in the early stages of developing AAC resources in their cities, states and nations.
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Newsletter Contents:

University & Research: Getting started in emerging AAC areas: What do we know?
Clinical News: The Bridge School Teacher-in-Residence Program
Governmental: ISAAC's EAN committee and Build-AAC project
AAC-RERC: AAC-RERC Webcast Series: Educating through consumer appeal
Resources & References
ACN: Complex Humanitarian Emergencies (CHEs) - Vol. 19 #4
(December 2007/January 2008) Call to action for people who rely on AAC to have disaster plans in place. This issue gives resources and information to be prepared.
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Newsletter Contents:

Complex humanitarian emergencies (CHEs)
World disasters and humanitarian emergencies: Unheard voices

Perspective: Person with CCN
Next time, I'll be ready

Perspective: Family
A Gulf family's odyssey

Perspective: Educator
Rebuilding an infrastructure

Governmental
Some "need to knows"

Resources & References
ACN: AAC research and development: Having an impact - Vol. 19 #3
(October-November 2007) Considers the potential impact of research and development (R&D) activities funded through the RERC on Communication Enhancement, known as the AAC-RERC. We site examples of how, over the past nine years, the knowledge gleaned from AAC-RERC projects has influenced the design of speech generating devices (SGDs) and, in so doing, the lives of people with CCN.
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Newsletter Contents:

University & Research
AAC research and development: Having an impact

Case Example #1
AAC technologies for beginning communicators

Case Example #2
AAC technologies for people with aphasia and traumatic brain injury

Case Example #3
Literacy and AAC

Resources & References
ACN: AAC for adults with acute and chronic medical conditions - Vol. 19 #1
(February 2007) Describes the use of AAC approaches and related assistive technologies (AT) by people who acquire severe communication impairment as a result of disease or injuries during adolescence or adulthood.
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Newsletter Contents:

AAC in the ICU
Based on chapter two by Garrett, Hepp, Costello & Fried-Oken2

Brainstem Impairment
Based on chapter three by Culp, Beukelman & Fager14

Traumatic Brain Injury
Based on chapter five by Fager, Doyle & Karantounis22

Spinal Cord Injury
Based on chapter four by Britton & Baarslag-Benson30

Dementia
Based on chapter eight by Bourgeois & Hickey36

MS, PD, and HD
Based on chapter ten by Yorkston & Beukelman43

ACN: False Beliefs and Misconceptions about AAC - Vol. 18 #2
(June 2006) This issue addresses some of the misconceptions people have about AAC and provides information that can be used to respond to the frequently expressed concerns of family members and professionals.
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Newsletter Contents:

Young Children: False beliefs, widely held
Adults with Acquired Disabilities: Myths and misconceptions
Equipment: It ain't necessarily so
On the Web: AT/AAC enABLES
References & Resources
AS: Choking and AAC - Vol. 9 #1
(April 2006) This issue focuses on the topic of choking or aspiration pneumonia and eating problems.
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Newsletter Contents:

In the Spotlight: Choking & AAC
Friends and Relations: Individuals take charge
Out and About: Working together for change
Raves & Reviews: An unfortunate event
AAC-RERC: ACOLUG: AAC On-line
ACN: Vision and AAC - Vol. 17 #4
(December 2005) This issue is to hoist a flag that says "Be on the lookout for vision problems".
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Newsletter Contents:

Cliical News-Vision and AAC
On the Web-What does the world look like?
Case Example#1-Jacob: Age 17
Case Example#2-Rebecca: Age 7
AAC-RERC- Webcast series: 2005 and 2006
Resources & References
ACN: Living with Amyotrophic Lateral Sclerosis (ALS) - Vol. 17 #2
(July 2005) This issue focuses on people with ALS and their closest communication partners, and highlights the tremendous difference that effective communication supports has on their lives.
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Newsletter Contents:

Social Networks-Interview: Living with ALS
Equipment-Tom's AAC system
AAC-RERC-Primary communication facilitators
A Fact Sheet-Communication Support
University & Research-ALS caregiver research
Case Example-Mr. G: A person with ALS
On the Web-SGD funding for people with ALS
AS: Rejection - Vol. 8 #2
(June 2005) This issue focuses on the rejection that people with disablities may feel when others look and act differently toward them.
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Newsletter Contents:

In the Spotlight: Who is that Masked Man?
Friends and Relations: Being Yourself
Out and About: Rejection
Raves & Reviews: The Big Box Incident
AAC-RERC: Visual Scene Displays
ACN: Transitions: Straight Talk - Vol. 17 #1
(April 2005) This issue focuses on the effects of transition periods in life on people who use AAC tools and strategies.
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Newsletter Contents:

Clinical News-The coming of age transition
AAC-RERC-Getting more out of school transition programs
For Consumers-Do not work on me!
On the Web-Resources:Coming of age transition
University/Research-Follow-up studies
Equipment-Transitions: Straight talk
Resources & References
ACN: Interior Dialogue and AAC - Vol. 16 #4
(December 2004) This issue is meant to encourage professionals in AAC to consider "interior dialoguing" as an important function of communication, and, therefore, one that warrants our attention.
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Newsletter Contents:

For Consumers-Interior dialogue and AAC
Clinical News-Inner language: One linguist's perspective
University/Research-Private speech and Down Syndrome
Equipment-Tools for augmenting interior dialogue
AAC-RERC-Telework to improve employment outcomes
Resources & References
ACN: Employment - Vol. 16 #3
(October 2004) This issue draws attention to the employment situation in AAC, and offers an update on some of the efforts underway.
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Newsletter Contents:

For Consumers-Perspectives on employment:AAC-RERC Writers Brigade, Great expectations, A decade of PEC@
Social Networks-The role of social networks in employment
International Perspectives-A preliminary survey
University/Research-Employment of individuals with ALS, ASD and CP
AAC-RERC-Telework, adult vocabulary and ACETS Online
ACN: Visual Scene Displays (VSDs) - Vol. 16 #2
(August 2004) VSD's, like other types of AAC displays, may be used to enhance communication on either low-tech boards or high-tech devices. This issue is meant to discuss how VDS can help address the needs of beginning communicators and individuals with significant cognitive and/or linguistic limitations.
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Newsletter Contents:

Clinical News-Visual Scene Displays
Beginning Communicators-Penn State projects
Adults with Aphasia-Nebraska project
Other Applications of VSD's:Beyond Conversation-Children's Hospital Boston projects
Prototype to Market
Resources and Select Articles and Chapters
ACN: Individuals With Autism Spectrum Disorders (ASD) - Vol. 15 #4
(November 2003) This issue clarifies the rationale for, and impact of, using a broad range of AAC strategies to improve the communication outcomes of individuals with ASD.
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Newsletter Contents:

Clinical News-Overview and update
For Consumers-FAQs about AAC and Autsim Spectrum Disorders (ASD)
Equipment-Using AAC to foster communication skills
Case Examples-Individuals with ASD
AAC-RERC-2003-2008: Electronic Screen Media and Intelligent Agents
Resources & References
ACN: Social Networks - Vol. 15 #2
(April 2003) Introduces a dynamic new tool: Social Networks: a Communication Inventory for Individuals with Complex Communication Needs and their Communication Partners and explains how to it can be used in AAC assessments, intervention planning and outcomes measurement.
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Newsletter Contents:

Clinical News - Social Networks: What is it? Why use it?
The CCP Paradigm
Modes of Communication - Everything counts
Types of communication - A communication continuum
The SN Inventory - Step-by-step
Case examples - three examples
AAC-RERC - Nothing about us without us
ACN: Systems Change in AAC - Vol. 15 #1
(December 2002/January 2003) Spotlights programs that model systems change in AAC service delivery, including an adult day program, a public school special education program, a graduate training program and a program changing public policy.
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Newsletter Contents:

Clinical News - Making inroads: Systems change in AAC
Case Example #1 - Facilitating changes in AAC service delivery
Case Example #2 - AAC systems change in higher education
Case Example #3 - An AAC-based program for children with autism
Case Example #4 - Promoting AAC systems change in Thailand and Canada
AAC-RERC - Technology transfer in AAC
ACN: Evidence-based Practice and AAC - Vol. 14 #4 & #5
(July 2002) This issue provides information on evidence-based practice (EBP) and implications for the field of AAC.
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Newsletter Contents:

Clinical News-Evidence-based practice: A next step for AAC clinicians?
On the Web-EBP websites
ACN Survey-ASHA SID-12 survey on EBP
AAC-RERC-The evidence: Organizing language in AAC technologies for young children
University/Research-EBP: An illustration
In Review-In press: Books on EBP
ACN: Developmental Apraxia of Speech - Vol. 14 #2 & #3
(December 2001) This issue considers what we know and don't know about children with developmental apraxia of speech (DAS), and the role that AAC techniques play in helping these children communicate more effectively.
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Newsletter Contents:

For Consumers-Developmental apaxia of speech
On the Web-Information sources for parents and professionals
Clinical News-Differential diagnosis: DAS and phonologic delay
Case Example-An AAC program for children with DAS
University & Research-Three empirical studies
The AAC-RERC-Across space and time: 2002 Interactive Lecture Series in AAC
ACN: Funding of Speech Generating Devices (SGDs) - Vol. 13 #6 & #14
(October 2001) This issue focuses on Speech Generating Devices (SGD's), funding for them and the new Medicare-related SGD protocol.
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Newsletter Contents:

Clinical News-Assessment protocol for SGDs
Governmental-Funding process for SGDs
Equipment-Medicare reimbursement for SGDs
Case Example #1-Person with dysarthria Amyotrophic lateral sclerosis (ALS
Case Example #2-Person with dysarthria Developmental disability (DD)
Case Example #3-Person with apraxia/aphasia Cerebral Vascular accident (CVA)
AAC-RERC-State of the Science Conference on Communication Enhancement
AS: Aging and AAC - Vol. 4 #3
(March 2000) This issue focuses on the aging process and AAC.
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Newsletter Contents:

In the Spotlight - Aging and AAC by Mick Joyce
Out and About - Internet Links on Aging with a Disability by Mick Joyce
Friends and Relations - Healthy Aging by Mick Joyce
Raves & Reviews - Dependency by Bill Lee
AAC-RERC - AAC-RERC: Projects on Aging
ACN: AAC in Young Children - Vol. 12 #6
(December 1999) This issue focuses on the use of AAC with young children. It summarizes the results of an ACN survey about the use of AAC with very young children whose speech is delayed.
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Newsletter Contents:

Clinical News-AAC approaches for infants and toddlers
University/Research-Role of speech input and output in effective AAC treatment
Equipment-For young children
AAC-RERC-Improving AAC technologies for young children
Resources & References
ACN: AAC and Older Adults - Vol. 12 #3
(June 1999) This issue addresses the AAC intervention needs of individuals who acquire severe communication impairments as they age.
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Newsletter Contents:

For Consumers-Baby boomers head for Golden Pond
Clinical News-AAC for older adults
Equipment-AAC devices for older adults
AAC-RERC-University of Nebraska projects
Governmental-Medicare update
References
ACN: Communication Partners - Vol. 12 #1 & #2
(April 1999) This issue focuses on the communication partners of individuals who use AAC and considers how to approach their needs for training and support.
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Newsletter Contents:

Clinical News-Communication Partners
On the Web-E-mail survey
For Consumers-Different strokes for different folks
Equipment-Training materials
Governmental-Parallels to the deaf community
The AAC-RERC-Six of sixty (months)
ACN: Emerging Areas - Vol. 11 #6
(December 1998) This issue focuses on the role of the AAC community in spreading information and resources to parts of the world where AAC techniques, strategies and devices are just beginning to be recognized in medical, educational and community service delivery systems.
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Newsletter Contents:

Case Examples-Getting there from here
Clinical News-Working in unfamiliar places
Equipment-AAC travel kit
AAC-RERC-Three new projects
Governmental-Emerging Countries Committee
References & Resources
ACN: Amyotrophic Lateral Sclerosis - Vol. 11 #1 & #2
(April 1998) This issue focuses on people with ALS/MND and highlights the use of AAC for people experiencing difficulty speaking and writing.
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Newsletter Contents:

For Consumers-Amyotrophic Lateral Sclerosis
University & Research-Outcomes of AAC intervention in ALS
Clinical News-Staying ahead of the curve
Equipment-High tech communication solutions
Governmental-Communication Independence for the Neurologically Impaired (CINI)
On the Web-ALS Websites
AS: Augmented Communicators on Work - Vol. 4 #1
(March 1998) This issue is about getting and keeping a job.
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Newsletter Contents:

In the Spotlight - Augmented Communicators on Work
Out and About - Talking to Employers
Friends and Relations - Beyond Work
Raves & Reviews - Think Big
Young Voices - Heading for Work
ACN: Aging - Vol. 9 #2
(April 1996) This issue focuses on aging and AAC practices with persons in their "third thirty" ages 60-90 years.
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Newsletter Contents:

For Consumers - The third thirty: Keep on communicating!
Clinical News - Who can benefit? Storytelling and poetry
Equipment - Making technology user friendly
University & Research - Aging with cerebral palsy: An Australian study
Governmental - Australia: A happening place
AS: Talking About Us - Vol. 2 #4
(December 1995) This issue focuses on how "other" people react to us with AAC
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Newsletter Contents:

In the Spotlight - Talking About Us
Out and About - This is Entertainment?
Friends and Family - Tips from Lenny
Raves & Reviews - Words About Words
Young Voices - What is Normal?
ACN: Angelman Syndrome - Vol. 8 #3
(June 1995) This issue focuses on the use of AAC techniques and technologies with children who have Angelman Syndrome (AS).
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Newsletter Contents:

For Consumers - Angelman Syndrome (AS) & AAC
Clinical News - Augmentative communication across the life span in AS
Equipment - Low and high tech strategies across the life span
Governmental - Support groups for persons with AS
University & Research - What are the questions?
ACN: Repetitive strain/Stress Injuries and AAC - Vol. 8 #2
(April 1995) This issue highlight the risks associated with using computers and AAC devices, and advocates for the use of approaches that will protect AAC users from repetetive stress injuries (RSI) throughout their lives.
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Newsletter Contents:

For Consumers - Repetitive strain injuries and AAC
Clinical News - Finding safe controls: Considerations that guide decisions
Equipment - On-screen keyboards: More options
Governmental - Safety at work and in school
University & Research - The adaptive Technology Resource Centre at the University of Toronto
ACN: Families and AAC - Vol. 7 #6
(December 1994) This issue focuses on families and AAC
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Newsletter Contents:

For consumers - Defining the term "family"
Clinical News - Family-centered: A shifting policy
Equipment - Tips for practitioners
Governmental - Impact of AAC devices on family functioning
University & Research - ISAAC's 1994 Research Symposium: Session on family-focused research
ACN: AAC and Vision - Vol. 7 #5
(September 1994) This issue focuses on sight and seeing.
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Newsletter Contents:

For Consumers - The ABC's of vision in AAC
Clinical News - Seeing: Issues and practices in AAC
Equipment - Symbols and devices for persons with Visual Impairment
Governmental - Groups solving problems
University & Research - RERC on Sensory aids at Smith-Kettlewell
ACN: Adult Day Programs - Vol. 7 #3
(May 1994) This issue focuses on adult day programs and strategies a typical program might offer individuals with complex communication needs.
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Newsletter Contents:

For Consumers - Chapter One: The changing mission of adult day programs
Clinical News - The story: Doing meaningful things at adult day programs
Equipment - "Quick and Dirty:" Using AAC in adult day programs
Governmental - Helping at the international level
University & Research - The Institute for Rehabilitation Research (IRV) Hoensbroek, The Netherlands
AS: AAC 101: A Crash Course for Beginners - Vol. 1 #1
(April 1994) This issue focuses on "what is" augmentative and alternative communication.
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Newsletter Contents:

In the Spotlight - AAC 101: A crash course for beginners
Out and About - How do you say hamburger in AAC?
Friends and Relations - Getting in the mix
Young Voices - Children speak their minds
Raves & Reviews - A review of Stephen Hawking's latest book
ACN: Cerebral Palsy - Vol. 6 #5
(November 1993) This issue focuses on people with cerebral palsy (CP)and the major challenges and barriers they face every day.
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Newsletter Contents:

For Consumers - Cerebral Palsy (CP): What it means
Clinical News - A changing role: AAC and people with cerebral palsy
Equipment - Desired AAC device features
Governmental - The International Cerebral Palsy Society (ICPS)
University & Research - Drooling or sialorrhea
ACN: Adolescence - Vol. 6 #3
(July 1993) This issue is about the experience of being an adolescent and an AAC user.
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Newsletter Contents:

For Consumers - Reflections of AAC users on their adolescence
Clinical News - Intervention with adolescents: The real stuff is on the inside
University & Research - Activities in Portugal: The first AAC Ibero-American Congress
Governmental - TIDE: The European Community's rehabilitation technology projects
Equipment - Materials appropriate for adolescence: A place to start
ACN: AAC with People on Trachs and Mechanical Ventilators - Vol. 5 #6
(November 1992) This issue discusses the use of AAC with people on trachs and ventilators
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Newsletter Contents:

For Consumers-Snapshots of four people dependent on trachs and ventilators
Clinical News-Service delivery considerations:ICUs, ventilators & trachs for adults and children
Equipment-Equipment options: Speech and non-speech AC devices
Governmental-Practices in Eastern Europe: Observations from Carolyn Watkins
University & Research-The Rehabilitation Engineering Center, Children's Hospital at Stanford
ACN: Hearing and Listening - Vol. 5 #5
(September 1992) This issue focuses on the importance of considering the status of hearing and listening for each individual who uses AAC techniques.
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Newsletter Contents:

For Consumers-Consideration of hearing and listening for persons who use AAC techniques
Equipment-Beyond hearing aids: Assistive listening devices
Clinical News-Strategies for enhancing hearing and listening
Governmental-Americans with Disabilities Act Titles II and III: Implications for people with communication problems
University & Research-What AAC manufacturers could do to enhance listening
ACN: AAC and Autism - Vol. 4 #5
(September 1991) The issue presents information about autism and the role of augmentative and alternative communication (AAC) in the intervention programs of persons with autism.
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Newsletter Contents:

For Consumers - What does AAC have to offer persons with autism?
Clinical News - AAC approaches to Autism: Facilitated communication, Functional communication, Picture exchange
Governmental - Clarifying U.S. assistive technology policies: Office of Special Education Rehabilitation Services Administration
Equipment - Intervention materials
University and Research - Canada's Rehabilitation Technology Research & Development Consortium
ACN: Telecommunications - Vol. 4 #4
(July 1991) This issue focuses on telecommunications for persons with severe speech impairments.
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Newsletter Contents:

For Consumers - "Ring a ling a ling:" Is anyone there?
Equipment - Dimensions of telecommunication technologies
Clinical News - Strategies for tele-communicating
Governmental - World Institute for Disabilities: Blue Ribbon Panel on telecommunications
University and Research - COST 219 and other European Projects
ACN: Teaching People about Communication Devices - Vol. 4 #3
(May 1991) This issue is about how to teach people with complex communication needs to operate communication devices.
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Newsletter Contents:

For Consumers - Operational competence: An important perspective
Equipment - Manufacturer support to professionals and consumers
Clinical News - Issues related to technology training and trainers
Governmental - Increasing access to equipment
University and Research - Michigan State's Artificial Language Laboratory
ACN: Intervention with Partner's of AAC consumers - Vol. 4 #2
(March 1991) This issue highlights a critical component of AAC interaction, i.e., "training partners," "facilitator training," "parent training," "peer training" and other variations around the theme of preparing people to interact with individuals who use AAC aids and techniques.
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Newsletter Contents:

For Consumers - Takes at least "two" to Tango: Spotlighting the partners of persons who use AAC techniques
Clinical News - It's no small commitment! Training partners to facilitate communicative interaction
Equipment - A peek at products you may have missed
Governmental - AAC organizations: A role in partner training?
University and Research - South Australia's Regency Park Centre
ACN: Persons with Severe Aphasia - Vol. 4 #1
(January 1991) This issue highlights the use of augmentative and alternative communication (AAC) techniques and strategies for those who have severe, chronic aphasia and whose speech is not sufficient to allow them to be independent verbal communicators in all situations.
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Newsletter Contents:

For Consumers - Aphasia and AAC: The nature of the relationship
Clinical News - Approaches to intervention for persons with severe aphasia
Equipment - AAC technology for individuals with severe aphasia
Governmental - Public policy and aphasia rehabilitation
University and Research - Rancho Los Amigos Medical Center
ACN: Persons with Severe/Profound Mental Challenges - Vol. 3 #3
(May 1990) This issue focuses on adults with severe and profound mental challenges who have spent a majority of their life in large institutions and on younger individuals who have also been set apart.
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Newsletter Contents:

For Consumers - Persons with severe/profound mental challenges (SPMC)
Equipment - Desirable features and useful technologies
Clinical News - Principles, processes, and strategies: A glimpse
Governmental - Making money and keeping it!
University and Research - Institute on Disability at the University of New Hampshire
ACN: AAC with Infants, Toddlers, and Preschool Children - Vol. 3 #1
(January 1990) This issue focuses on the application of AAC with infants, toddlers, and preschool children.
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Newsletter Contents:

For Consumers - AAC...A viable approach to prevention
Clinical News - How the experts see it. Goals, strategies, and guidelines for early AAC intervention
Equipment - Tools of the trade: It's all in the application
Governmental - Australia's AAC community: The state of Victoria
ACN: AAC after Traumatic Brain Injury (TBI) - Vol. 2 #6
(11/30/1989) The primary focus of this issue is the role of AAC in the lives of individuals who have sustained severe brain injuries as a result of a trauma.
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Newsletter Contents:

For Consumers - Life after brain injury is never the same...
Clinical News - AAC's role in recovery from TBI: Issues and practices
Equipment - The role communication aids play
Governmental - Glimpse of Down Under: Part 1, New Zealand (NZ)
University and Research - The Assistive Device Center: California State University-Sacramento
ACN: Visual Scanning - Vol. 2 #4
(July 1989) This issue focuses on Visual Scanning. How able-bodied humans "learn complex motor skills" and how this relates to those attempting to develop visual scanning techniques.
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Newsletter Contents:

For Consumers - How humans develop skills: Information processing and visual scanning
Clinical News - Considerations for training visual scanning techniques
Equipment - "You say regular; they say automatic" Let's call the whole thing scanning!
Governmental - Updating the Tech Bill: The ball is in Washington's court
University and Research - Sweden: Current research & development activities
ACN: Apraxia: In Search of Better Solutions - Vol. 2 #2
(March 1989) This issue focuses on important issues and controversies surrounding "Ambulatory individuals" with apraxia of speech (DAS).
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Newsletter Contents:

For Consumers - Individuals with Developmental Apraxia of Speech (DAS)
Clinical News - Issues Affecting Clinical Practice
University and Research - The University of Minnesota's Augmentative Communication Program
Equipment - Communication Aids and Applications for Ambulatory Individuals
Governmental - "Life After 21" Regional Information Exchange Programs in U.S.
ACN: Individuals with Dual Sensory Impairments (DSI) - Vol. 1 #4
(September 1988) This issue focuses on individuals who have both hearing and vision impairments.
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Newsletter Contents:

For Consumers - Individuals with Dual Sensory Impairments (DSI)
Clinical - Augmentative interventions adapted for those with DSI
Governmental - P.L. 100-407 Guess What? Guess Who?
University and Research - University of Delaware's Rehabilitation Engineering Center for AAC
Equipment - No tech, light tech and high tech for persons with DSI
ACN: Motor Neuron Diseases and AAC - Vol. 1 #3
(July 1988) This issue focuses on augmentative communication interventions with those who have motor neuron disease, specifically those with amyotrophic lateral sclerosis (ALS).
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Newsletter Contents:

For Consumers - Maintaining communication for individuals with ALS
Clinical - Augmentative interventions in ALS: Management principles and practices.
University and Research - The Morton Robers Augmentative Communication Clinic at Queens College
Equipment - Non-electronic and electronic communication aids for persons with ALS
Governmental - U.S. Technology legislation: On the "fast track!"

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